Crowdfunding since 2010

The SMILe App supports patients in their first year after allogeneic stem cell transplantation to ease transition from hospital to home.

SMILe focuses on people with stem cell transplantation. It provides support in everyday life and helps to make informed decisions to detect and reduce complications
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Funding period
12/17/18 - 2/28/19
Realisation
SMILe will be tested in 2019
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Minimum amount (Start level): 25,000 €

To have a more interactive design of the app by embedding little explanation videos about health-promoting behaviour we need a minimum of 25.000€.

City
Basel
Category
Science
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What is this project all about?

Every year more than 3000 people in Switzerland and Germany receive an allogeneic stem cell transplantation.
Although the transplant cures them, a majority of the transplant survisors develop chronic complications. Therefore, they have to follow a huge set of recommendations and learn to implement a healthy lifestyle into their daily life. This can be challengeing.
The SMILe project aims to develop and test an App that support people after allogeneic stem cell transplantation in their first year after transplantation and makes the transition from hospital to home easier. Patients will use the app on a daily basis to enter the most important medical, behavioral and symptom related parameters. Data will be transferred electronically to the transplant center and overlooked by a Care-Coordinator. Patients will receive automated feedback tailored to entered values, to support them in their self- management or decision when a re-admission is necessary.
Features of the App are:

[list]
  • Monitoring of the most important medical, behavioral and symptom parameters with automated feedback based on an predefined algorithm
  • Symptom dictionary for the most important symptoms and side effects
  • Transfer of entered values to the transplant center and supervision by a nursing coordinator
  • Guidance and information on health-promoting behaviors such as taking medication, avoiding infection or physical activity

    This type of App-supported follow-up care has been tested successful in other chronically ill populations. Patients feel better supported, experience better quality of life, better health and fewer complications, and had fewer unplanned re-hospitalizations.

    Next year, the SMILe app will be tested in the real clinical setting, at the University Hospital Freiburg and Basel (Germany, Switzerland). We also plan to scale it up to other patient groups (organ transplantation) or treatments (autologous stem cell transplantation).

    Please, find more information on our project websites:

  • https://nursing.unibas.ch/de/forschungsprojekte/forschung/forschung/smile/

    https://www.hs-augsburg.de/Informatik/Projekt-SMILe.html

    What is the project goal and who is the project for?

    The aim of SMILe is to re-design follow-up care after allogeneic stem cell transplantation. Moving from a more acutely, reactive system to a proactive follow-up care. This supports patients self-management, allows an early detection and prevention of complications resulting in fewer unplanned re-hospitalizations, fewer emergency room visits and may also improve patients quality of life.

    Why would you support this project?

    • Because patients after stem cell transplantation expressed the wish for more support
    • Evidence shows that electronic monitoring of medical, behavioral and symptom parameters combined with a care-coordinator can improve quality of life, reduce complications, and leads to fewer re-hospitalizations
    • The SMILe app provides information about their symptoms and critical thresholdss and they learn how to master their daily life
    • because the active support of health-promoting behavior supports the long-term success of stem cell transplantation as optimally as possible
    • because allogeneic stem cell transplantation is only the beginning and other outpatient oncological treatments or transplantation types such as autologous stem cell transplantation, heart-lung, kidney or liver transplantation will follow

    How will we use the money if the project is successfully funded?

    By reaching the first funding goal, we are able to develope more interactive components by producing 3-4 explanation videos on health-promoting behaviors and embedding them into the app. Topics could be e.g. prevention of infection: how do I disinfect my hands, how do I prepare food, or why regular medication is important.
    Once the second funding target has been reached, we can implement additional functionalities of the app, such as motivational elements to support physical activity or a learning platform with infos how to prevent infections.

    Who are the people behind the project?

    SMILe is an international collaboration project of the University of Basel, Switzerland; the University Hospital Freiburg, Germany; the University of Applied Science Augsburg, Germany and UZ Leuven, Belgium and works closely together with patients and self-help groups.
    The team that made the development and implementation of the SMILe App a matter of the heart consists of Nursing Scientists, Physicians, Patients, Psychologists and IT Experts:

    • Prof. Sabina De Geest (Nursing Scientist, Principle Investigator / Development App Content)
    • Lynn Leppla (Nursing Researcher and Clinician, Project Management Germany / Development App Content)
    • Sabine Valenta (Nursing Scientist, Project Management Switzerland / Development of App Content)
    • Anja Schmid (Nurse/ Psychologist, Research Assistance/ Development App Content)
    • Prof. Fabienne Dobbels (Psychologist / Development App Content)
    • Dr. Sonja Beckmann (Nursing Scientist / Development App Content)
    • Juliane Mielke (Nursing Scientist / Development App Content)
    • Janette Ribaut (Nursing Scientist / Development App Content)
    • Helwig Opel (Data Security)
    • Prof. Dr.med Monika Engelhardt (Physician, Medical Expert)
    • Prof. Dr. med Robert Zeiser (Physician, Medical Expert)
    • Prof. Dr. Hartmut Bertz (Physician, Medical Expert)
    • Alexander Ewerhardt (Patient Representative)
    • Prof. Alexandra Teynor (UX / UI Design / Software Development)
    • Margarita Führmann (Software Development)
    • Michael Führmann (Software Development)
    • Dennis Rockstein (Software Development)
    • Daniela Neupert (Software Development)
    • Viktor Werlitz (Software Development)
    • Tobias Schulz (UX / UI Design)
    • Marina Lemke (UX / UI Design)
    • Vanessa Schuhmacher (UX / UI Design)
    • Prof. Phillip Heidegger (Head of Software Development Monitoring Component Clinic)


    We have already received funding from the Swiss Cancer League and the B. Braun Foundation, but these funds are primarily for clinical testing, which provides important results for health insurance why re-designning follow-up care is important.

    We are convinced that you can change the world with small things! Please support our SMILe project:-)

    SMILe

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    Institut für Pflegewissenschaft
    Bernoullistrasse 28
    4056 Basel Schweiz
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    The SMILe App for your stem cell transplantation
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